Mom Wants A Diabetes Cure

Monday, July 21, 2008

I Don't Know

Is it that he's sneaking food and not dosing himself for it?

After being dipped in a lake, is it that his pump has gone a little haywire and isn't pumping the way it should?

Is he growing?

Are his infusion set sites all used up?

Is his insulin corrupted?

Did Jupiter and Saturn line up directly with orbit of the moon while the Sun did a backflip landing into a graceful pirouette?

Who the hell knows why, for the past few weeks, he's been sky high in the 400s and then dipping into the 300s and lo and behold delighting me with a sweet 200 range every now and then.

Fuck an A.

None of the standard "fixes" are doing the trick. We've upped his basal rates and bolus ratios. We've changed his infusion sets when ever he's been in the 400's. His insulin isn't expired.

I don't know what else to do.


  • Even though his insulin isn't expired, that would be my next suggestion, to start with a new vial. If it doesn't do the trick, you can still finish the first vial; nothing wasted. One time when I had tried everything under the sun to bring the blood sugars down, I tried a new vial, and it did the trick. Frustrating as it is, sometimes we never figure things out. When I get to that point, I'll write a book:)

    By Blogger Toni, at 7/22/2008 1:24 AM  

  • I agree with Toni. go through every possibility. If a new vial works that ROCK ON and if not, well at least you ruled that out too.

    oh and did I mention diabetes sucks?
    Sorry Shannon. I wish I had a better answer.

    By Blogger George, at 7/22/2008 2:50 AM  

  • The insulin should be OK. I just opened a new vial I think on Friday, so it's brand new.

    Toni, if you figure it all out and write a book, I'll be the first to buy it :)

    By Blogger Shannon, at 7/22/2008 4:40 AM  

  • Would you try giving him an injection of insulin to see if that brings him down? That's what I do when things go awry. (Then again, is he on a pump? I can't remember and I'm presuming he is. If he's not, nevermind....)

    By Blogger Lyrehca, at 7/22/2008 9:17 AM  

  • Shannon -

    Don't know if this will work, but during hot weather, I fill up my reservoir only 1/2 full. I find that during a heat wave or hot weather, the insulin in the reservoir gets "skunky"much quicker than normal and my blood sugars go sky high.

    Yes, it means replacing reservoirs more often and possibly changing infusion sites more often, ( I think the heat affects them to) but I noticed a big difference.

    My insulin works and my sugars are OK.

    Of course the whole Jupiter and Saturn in retrograde may indeed be a factor. In that case, your on your own, unless of course NASA decides to get involved.

    Hang in there & keep us posted!

    By Blogger k2, at 7/22/2008 10:23 AM  

  • Has he been wearing blue? Blue tends to raise blood sugars. But only in July. He should be back in range come August (as long as he stays away from orange).

    Stupid f-ing disease! Sorry about the highs.

    By Blogger Carey, at 7/22/2008 11:08 AM  

  • Major suckage Shan.

    It's all about going through a process of elimination (which in and of itself can be frustrating as hell).

    I think a good old fashioned injection when he's high like that can help point you in the right direction. If it works promptly then you know you have to head in the direction of investigating infusion issues, if not then you can be confident that it is not infusion issues. Know what I mean?

    The way I see it, even if it doesn't "work", but allows you to cross something off the "suspect" list, then it was a success and you can move on to the next thing on the list.

    And a growth spurt will screw everything up...

    By Blogger Scott K. Johnson, at 7/22/2008 11:26 AM  

  • I think I'll probably have to resort to injections and see how it goes. After 5 years of being on the pump, I'm sure his arms are all healed up from the injections he used to get there, LOL.

    We actually put him back on his old pump yesterday just in case his most updated one was the culprite after getting wet, so that is yet another item we crossed off our list.

    Diabetes stresses me out when it goes to uncooperative extremes like this.

    By Blogger Shannon, at 7/22/2008 11:45 AM  

  • I hate to say this, but sometimes the cause (whatever it may be) doesn't have a solution. So you just have to exhaust the all of the possibilities, while still trying to go with the flow. Who knows in a few days things could be back to normal. Unfortunately Diabetes never plays fair. I hope these rough numbers go away just as quickly as they came.

    By Blogger Jillian, at 7/22/2008 11:54 AM  

  • hey...this could be my post. Ian has been sky high the past few weeks - started with vacation and then I expected it to level off but we've been home since saturday and he's still high. wtf. I've tried everything, including a shot which he totally didn't appreciate.

    By Blogger Michelle, at 7/22/2008 3:28 PM  

  • I just hate the guessing game - just when you think you should know it all - the guessing game begins...

    Bad Site
    Bad Tube
    Bad Insulin
    Growth Spurt
    Full Moon
    Miscalculated Carbs
    To tired
    To energetic
    Getting Sick
    Favorite person voted off the island
    Sneaking food
    No Stress
    Jumping on one foot

    By Blogger Becky, at 7/23/2008 10:06 AM  

  • Ooohhh...I never thought about favorite person voted off the island. I wonder if THAT'S it! LOL.

    By Blogger Shannon, at 7/23/2008 10:10 AM  

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